In the present report, the Independent Expert on the enjoyment of human rights by persons with albinism provides perspectives, the findings of a joint research project, and recommendations on improving the daily challenges and life experiences of children with albinism in the context of the right to a family life. The report underlines the range of violations experienced by children with albinism and highlights the practical risks to children with albinism when separated from their families owing to discrimination, lack of access to education or health services, ritual attacks and poverty, among other factors. It also presents sets of good practices to prevent and respond to separation.
The Independent Expert also outlines in the present report activities undertaken in the implementation of her mandate over the period from June 2023 to June 2024, including, inter alia, collaborative research initiatives, consultation workshops and training programmes.